Chronic Adventuress with a Chronic Illness

Yeah, I guess it’s time for me to face the facts: I’m going to be a sickie for the rest of my life. Believe me, even if I try to forget about it, there’s always someone there to remind me that I could be just as easily knocking on death’s door as I could be hiking mountains and enjoying life. Whoa, wait, did I just say enjoying life? With a chronic illness? Yes, truth of truths is that no matter what stage IV cancer has taken away from me, there’s still more that it hasn’t taken away from me. The number one thing I still have is my happiness. We’re talking real, deep happiness, not the material kind that a lot of people try to substitute for the genuine product. In fact, I find that more than ever, little things make me smile. A lot of things make me smile. And they make me smile a lot! Understand?

Since I was diagnosed in 2019, I’ve tossed around ways to help others who are struggling with illness. I touched on being “the new face of surviving cancer,” and wrote the story of my first year with the disease. (It’s in a drawer now, unpublished!) I’ve ridden the “Who am I now?” wave the whole time. After a recurrence soured my survival skills for a few months, I’m back in a comfortable place full of hope and future plans and feeling like I have something to offer others living with chronic illnesses.

Before I start sharing my thoughts, let me first clarify a few things. Most importantly, my chronic illness is lung cancer, which, if I had it ten years ago, would have undoubtedly killed me. I am extremely fortunate that my illness can be controlled with medication. This likely sounds far fetched, but it really isn’t. Read here for more information about how we can now treat some individuals with lung cancer. Also, my disease has nothing to do with smoking, so before you think that I somehow “asked for” this, read here about how many people who get lung cancer now have never smoked. With that out there, let me just say one more thing…

I recently Google’d some general keywords to be sure that I wasn’t stepping on anyone’s toes by calling myself the Chronic Adventuress with a Chronic Illness, and was disgruntled to find out that there are a heck of a lot of “experts” out there writing about living with a chronic illness who don’t have a chronic illness. That decided it. I have the first hand experience to back it up. And, I can honestly say that I’ve had to change my lifestyle very little since my diagnosis, thanks to steps that I have taken to preserve my well being. I’ve intentionally peppered this post with photos of me winning at the game of life. All of them were taken post diagnosis.

Without further ado, here are my six suggestions:

1) Get the best medical care possible

2) Seek no sympathy

3) Find new ways to do what you love

4) Find new things to love

5) Surround yourself with positivity

6) Don’t let your illness define you

I planned to talk about all six points in this post, but I know the limits of the human attention span circa 2021. Having the opinion that these are all crucial (and we are, after all, talking about life, and living it as happily as possible,) I think they all deserve to be fleshed out, and I will give them all their due, even if I have to write several different posts! So for now, let me talk a little more about #1, GET THE BEST MEDICAL CARE POSSIBLE.

The best medical care possible? A no brainer, right? If I thought it was a no brainer I wouldn’t even mention it. Getting the best care possible is not a matter of insurance or money or location. It is a matter of choice, plain and simple. While I’m extremely fortunate to live within driving distance of some of the best medical facilities on the planet, don’t think for one minute that patients don’t travel great distances across states, countries, and oceans to get here. And don’t think for the next minute that there aren’t people who have access to the same care that don’t seek it, because there are. I urge everyone I talk to who has a serious illness to research the best, and get it any way they can. The more serious your illness, the more likely you are to need something beyond your local hospital. Don’t waste precious time getting what you need and deserve!

I’ve now exhausted your attention span!

I promise to get back to this discussion soon. Until then, adventure on!

Author: barblee

Barb Lee is a native of Western Massachusetts who loves to write, travel and hike the world, and hang out with her beautiful Jersey Wooly bunny Muffin. Her whole life changed when she was diagnosed with Stage IV lung cancer in October of 2019. By January of 2020, she was bouncing back in a major way. Now, in addition to all her favorite activities, she wants to help others make the most of life following a devastating diagnosis, while she continues to beat the odds.

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