It’s Bucket List Time!

Having a Bucket List is pretty much a given thing for most people, but did you ever think about the right time to start chipping away at it? I’ve spent so much time traveling and hiking and doing other things that I love to do that I feel like I’ve been barreling through my Bucket List for quite a while. However, less than a year ago I really started to narrow things down and decide what it is I still must do. Because…

*I’m not getting any younger. Are you?

*I have this crappy disease to contend with now.

*COVID19 changed the world for me and a lot of other people.

For all those reasons and more, I find that there are a lot of things I don’t want to do any longer, so I’m happy that I did them before now. For example: I have no real desire to sit on an airplane for twenty hours to get somewhere. (Though, given a few items on my list, I may find myself doing that at least a time or two more!) There are also things that I want to start doing, like experiencing cruises, which I have hardly done at all. I took these wishes into consideration when creating my list. My choices are truly a mix of old favorites and new interests.

Without further ado, let me share my personal Bucket List, including my progress at getting the items done. I eliminated a few this year!

Experiences

* Cruise to Antarctica. Yeah, this is top of the list, baby! I really wanted to see my seventh continent early in 2023. I’m ready. But wait! The two cruises that I narrowed my adventure down to are booked solid. No joke! Who knew that a legion of people around the world would be plunking down between $10,000 and $50,000 to board a ship for two weeks or more to see penguins and seals? Not me! But you can bet I’ll be first in line in 2024!

* Greenland Cruise. One of my travel friends and I have been talking about this one for a couple of years now, and we came oh so close to booking it for next July. Then…she backed out. I’m crushed. But I will find a way!

*Alaska Cruise. I’ve road tripped the Last Frontier twice, but have never been to southern Alaska, where there are no roads. Must get there. Not sure when this will happen, but this one will definitely be easier to pull off than the two above. Glacier Bay National Park will be part of the package. More on why below!

*Hiking in St. John, U.S. Virgin Islands. Over and over again I see St. John touted as an amazing place to hike, always as sure sign that I’ll be interested. Not sure why I haven’t jumped on this one yet.

*Australian Outback. Uh-oh, twenty hour flight! But I know it will be worth it. I’ve been Down Under once already and must go back before I leave this world.

*See the Pigs in the Bahamas. I kid you not! I’ll spend the whole trip on the beach with the pigs then come home happy. Probably another cruise. Do you see a pattern here?

*Hiking in Hawaii. Oh, and I just figured out how to get to American Samoa, so add that to this particular adventure.

Countries

*Costa Rica. I was scheduled to go in December of 2021 when COVID19 was still a hot topic. I couldn’t risk getting stuck in a foreign country, so cancelled. No plans to reschedule, but not giving up.

*Brazil. I never wanted to go here until I saw some pictures of Rio on Instagram, then it shot to the top of the list. And I want to see that big waterfall while there too. Likely to be a part of my Antarctic adventure in 2024.

*Return to Portugal. This one tugs at my heart strings, because I had to cancel my third trip to one of my favorite countries due to cancer. But there is hope…

*Switzerland. Woo-hoo! I found this really cool rail trip online and put a down payment on it for June. Let’s roll!

* Return to England. Did you ever go somewhere and not do something while there, then it sticks in your craw for, like, twenty years? Me too! Here’s the thorn in my side: In 2002 I went to London, Liverpool, and Canterbury. And yes, the journey to Liverpool was for the obvious reasons: Fangirling before the word was even part of the English vernacular. I did everything I wanted to do with regard to my beloved Beatles…except one thing: I didn’t go to the cemetery where Eleanor Rigby is buried. Can such a thing bother you for twenty years? Yes, it can. And it has. So that will be taken care of, put to rest once and for all. And just for kicks I added four days in Portugal to the end of the trip to see how much more it would cost. Turned out to be so insignificant that I’ll do it. This will all be my retirement present to myself. I intended it to be Antarctica, but this will more than suffice.

More…

*National Park Hiking. I started working on the goal to hike them all a decade or more ago, after I had already visited many of them. The 2022 count is thirty-eight down, twenty-five to go. Many of the locations I have left are remote and tough to get to, but I’m not giving up. Every summer I hike more. In fact, I knocked off a load this past summer.

*Climb The Edge in New York City. Have you heard about this? Another excuse to go to my precious Big Apple.

*Concerts. Paul McCartney, Foo Fighters, Elton John, Harry Styles, and Ed Sheeran.

*Buy My Own Little Piece of the World in a 55+ Community. I came of age not so long ago. Working on it.

*Buy and Road Trip in a Small RV. Not working on this one yet, but once other things are settled I will.

*Last but not least, I want to spend as much time as possible with my beautiful niece in South Carolina and my amazing sister Jeanne nearby.

Recent Progress

I knocked off five national parks this summer, and also saw Sir Paul McCartney and Elton John in concert. Chipping away.

Please enjoy photos from some of my recent Bucket List events!

What’s on your list?

Cursed, But Blessed!

I know, I know, it’s been a while since my last post. But if you’ve read enough of them you know that I love my summer road trips, and they keep me pretty busy. Not busy enough, however, to stop me from thinking about things that I’d like to blog about. Here’s one that popped into my mind as I toured California again for nearly three weeks. And if you don’t mind, I’m including snaps from my trip!

I don’t know how many times I’ve declared myself a “lucky girl.” The term just seemed appropriate, and it illustrated that I didn’t take the life I had (and the life that I still have) for granted. A good paying teaching gig, friends to travel the globe with, a few people who really, truly love me.

And then, cancer struck in the autumn of 2019, and just about the worst case scenario I could ask for was mine: Stage IV lung cancer. A curse for the rest of my life, which probably wouldn’t be much longer anyway. After a pretty good run of being a “lucky girl,” my time would wind down and I’d fade away, into the sunset. In like a lion, out like a lamb.

But wait. After seeking top tier medical care, things started to look considerably brighter. Nearly three years later, I’m still here. Not only that, I continue to do what I love to do. So the question looms: am I still a lucky girl? Am I luckier than lucky? Or am I truly cursed?

I think that all apply. Let’s talk about being “cursed” first and get it out of the way. That’s how I like to do things in life: saving the better stuff for last.

Because of the life that I’ve lead, that, by the way, I made for myself through sound decisions and hard work, I’ve been the target of what the world now appropriately calls “haters.” A perfect term! And regardless of how the world coaches you to handle “haters,” there’s only so much vitriol you can take before is starts to stick. When “haters” touch on every aspect of your life, from your body, to the way you travel, even to what you have in your freezer, the hurt sinks in deep. When these individuals not only hurt you, but also the people you love most in the world, the sorrow becomes unbearable. You would hope that the hatred has stopped since I got cancer? It has not, and in some ways it has only gotten worse, since I not only have to deal with this disease, I have to deal with them too. Between cancer and them, I would honestly rather deal with cancer. At least cancer can be controlled for periods of time. The nasty humans that I’m talking about don’t ever stop the abuse and the pain. On top of all this, I’m dealing with the death of the only person I could really talk to about my illness, and about their sickening way of treating me. The past few months have been incredibly trying, and sometimes I’m not sure that I can go on, or that I want to go on, or that I want to keep doing well.

But then…I think of all the things that I’ve done in this life and how there are so many other things I want to experience before I leave this world. And in spite of this disease, I can still do them! Herein lies the blessing. I may have the deadliest cancer at the deadliest stage, but lung cancer has treatment options that other cancers don’t have, treatments that sometimes allow patients to live normal lives for many years. Thus far, I fall into this category. I’ve maintained my lifestyle of hiking, biking, and traveling, something that my oncologist has said has contributed greatly to saving and extending my life.

The past three years have not been easy. Radiation, scans, medication changes, progression, side effects, haters. But I’ve had a lot of fun too. I can’t say that I haven’t. And as always, I’m not seeking sympathy. I’m just putting my feelings out there, trying to write on topics of interest, and hoping that maybe I’m helping someone who has the same issues.

So you see the confusing life that I lead now. Then again, I have lead that same confusing life for decades. Great love, crushing adversity. Loss, and luck. Extreme sadness, extreme joy. Sometimes, all at once.

Some days I wake up feeling like crap and I tell myself, “I can’t do this anymore.” But then I think of the two family members who still love and need me, I think of some of the great friends I have, I think of my sweet bunny Muffin, and my traveling and writing and hiking, and I say, “Okay, I’ll keep trying to get through this.” These days, I’m looking for a fresh start. Have to keep moving forward for that.

Cursed perhaps, but blessed more.

Fangirling!

Hey, is fangirling a word? Well, if it isn’t, it is now!

I’m not normally a gushy, shivering mess when it comes to celebrities. But on my current road trip (I’m starting this post from Cleveland, Ohio, almost at the end of my drive home,) the past two days have been spent paying homage to some of my all-time favorites, namely James Dean and The Beatles!

When you live with a chronic disease like I do, you always have to wonder if you’ll get another chance to do what you love. Then again, life isn’t guaranteed for anyone, so we all might as well be doing what we want when we can! Which is how I ended up in Fairmount, Indiana, again after a twenty-eight year hiatus, and at the Rock and Roll Hall of Fame at the precise time that the “Get Back to Let It Be” exhibit is running…

For whatever crazy reason, on this year’s trip I seem to be revisiting places that my beautiful mom and I first saw in 1994, on our very first cross country road trip, which spanned 9,400 miles, seven weeks, and twenty-four states. You know, that trip that is supposed to be “once in a lifetime” but turns into a yearly occurrence? (Smile.) That was the first time I was in Fairmount, Indiana. James Dean was actually born in the small city of Marion, Indiana, a few miles north, but spent most of his childhood and teenage years in Fairmount. When we first arrived in town I was, quite frankly, obsessed with Jimmy, even though he died in his Porsche Spyder eleven full years before I was born! I may have calmed down and grown up a little since then, but I’m still a big fan.

Much of the same can be said for my “thing” for The Beatles; I totally missed the Ed Sullivan experience by nearly three years, and when my dearly departed sister Marie saw them at Suffolk Downs racetrack on August 18, 1966, I was a few months from departing the womb. But I crave my Beatles lore almost as much as I do their music; seriously, what could be more interesting than being a Beatle?! From what I can recall, my first real brush with my four cherished boys was when I asked Marie to buy me Sgt. Pepper’s Lonely Hearts Club Band for one of my birthdays in my teen years. And yes, I still have it! Side note: I’ve been to Liverpool (2002) and am hoping to go back later this year, have walked the “zebra crossing” and written on the wall in front of Abbey Road Studios in London twice, have gone to the Imagine memorial in Central Park, New York City, several times. Just recently I saw Sir Paul in concert at Fenway Park in Boston. Another one off the Bucket List, and another piece of the homage completed!

Getting to Fairmount again meant adding an extra hundred miles of driving to my day, so I had my priorities set. The town is so small that it isn’t such a hard thing to drive the whole length of it, which I had to do anyway, as the items on my list were, naturally, on opposite ends. I would have liked to spend time in the James Dean Gallery and the Fairmount Historical Society (filled, of course, with more Dean memorabilia!) like I did in ’94, but what was most important to me is probably what most super fans would want to see: the grave and his boyhood home, which are very close together. I remember Park Cemetery being quite small the first time I was there, and the grave being very easy to find. Now, the place is huge and signs have to point the way or else no one would ever find it. Dean’s boyhood home has also grown considerably in the past twenty-eight years; his cousin Marcus Winslow, who was just a boy when Jimmy was making his way in Hollywood, now runs a full-fledged farm, and it is a beautiful landscape of rolling green fields and white picket fences. Marcus was out on the riding lawn mower the day I was around, and I’m happy to say that he waved to me. My brush with greatness was complete!

Interestingly, “Get Back to Let It Be” was only a small part of director Peter Jackson’s extensive documentary of the Fab Four and was skillfully inserted into the Level O exhibits of the Rock and Roll Hall of Fame. I was concerned that I wouldn’t have enough time to see the best of the hall, but because of the location of the exhibit I was able to take in most of the rest of the floor on the way to The Beatles. “Get Back to Let It Be” consisted of long-shelved excerpts of the tapes made of the recording sessions for the Let It Be album, including the famous “concert on the roof,” as well as instruments used, and other memorabilia. Because it was compact, it wasn’t overwhelming to see the entire thing, and to see it well. I was very satisfied with the entire floor!

Pilgrimages have always been included in my travels. Part of the fun is finding what is sometimes a needled in a haystack. Yeah, I think it’s about time to book that return trip to Liverpool!

An Open Love Letter to Utah

Dear Utah,

I remember clearly when we met: the year was 1995, I was with my beloved mom, and we were driving cross country for the second time. The year before we had cut our teeth with a 9,400 miler that inexplicably, did not include a trip through your glory. Yes, there were many other glories, but maybe not quite like yours. This particular trip had a catch: I had just purchased a little bright pink car that we would leave in Southern California once I found someplace to live there. That was my biggest dream leading up to 1995: living in California, and I lived it for five years. But that’s another story for another day, and it’s a long story, for my love affair with California continues. At times, it even competes for my attentions that I usually reserve for you. Believe me, this is not a slight to you, my love. It just IS.

Well, how do you like that! In writing this letter to speak my appreciation, I realize that I have things a bit wrong. 1995 was not the first time I saw you, it was the first time, perhaps, that I REALLY saw you. Mom and me actually drove up to Zion from Vegas in 1993 and stayed a couple of days. Just a little sneak peek at your well known red rock magnificence, and yes, we were impressed. But as I said, 1995 was the deal sealer. As only a road tripper knows, the power to choose where you go and for how long, to have the time to marvel at the color of the rocks in Glen Canyon and wonder how a strip of I-70 can be more beautiful than seventy-five percent of the rest of Planet Earth, will do it. Love at first sight, and forever love at second. And third. And fourth. And…Whew!!

Records indicate that I didn’t make it back to you until 2008 (how can this be?!) and even then, I only flew into Salt Lake City to drive north into other states. Still, I remember that I was pleasantly surprised by random findings along the way.

Listen, I know what I was doing: I was beginning to explore the world outside of this country, and I was completing the tall task of visiting all 50 states in my domestic travels. I also buried Mom, my best friend and greatest traveling partner (sigh) in 2004, so I was cutting my teeth as a solo traveler and really, just trying to figure out who I was.

And then, a big event took place in 2009: I started hiking. That’s when things started to get serious. Still, the slam dunk didn’t happen until 2013, when I spent two and a half weeks hiking all five National Parks in your awe inspiring southern extremities. Zion, Bryce, Capitol Reef, Canyonlands, Arches. While I loved them all (of course!) one emerged as my favorite, and remains thus: Canyonlands. Even as I chip away at hiking ALL the National Parks in the United States, I just can’t keep away from Canyonlands. Doing the same hikes time after time in Canyonlands. Dreaming of Canyonlands. Not enough time in a lifetime to get enough of Canyonlands. Did I mention I love Canyonlands? 😉

For me, the only other place in Utah that comes close to Canyonlands is Glen Canyon. That narrow strip of excitement between Hanksville and Blanding. Yes, that part of Glen Canyon. The Dirty Devil River. Bridge over the Colorado. Hite Overlook. I take the same darn pictures every time. And I don’t care.

Oh, don’t even get me going!

2017, 2018, 2019, 2021, 2022. COVID19 was the only thing that stopped me from being there in 2020. Our reunion in 2021 was unbelievable, because you see, I found out I had cancer in the autumn of 2019, and guess where I was a month earlier? And the thought of never seeing you again was unbearable.

Cancer sucks. Needles, scans, bad news, one step forward, two steps back. But as I became a pro at all of it, I realized that I had a pretty great defense mechanism: memory. Because of memory I didn’t have to think of scans when I was having scans. I could think instead of all the amazing places I’ve had the incredible fortune of exploring. And, you guessed it: I spent a heck of a lot of time in Utah when I was lying in some MRI beast two thousand miles away. How can I ever thank you for that?

I can’t. But I’ll try anyway, by giving you my continued patronage for as long as I have left in this life.

See you soon, my love.

About Traveling

Hey, this will be my last post for a few weeks. Vacation time is nearly here, and I’m heading back out on the road again. Which makes this the perfect time to write about one of my favorite subjects, for the first time in a while: Traveling!

I always find it so weird when people make it sound like there is some “right” way to travel. That you, as the subject, have to travel in some certain way to be a “traveler” and not a “tourist.” That there is some time frame that you have to spend in a place to make it worth your while and to satisfy others that you successfully “saw” something or somewhere. That one person’s way of traveling is superior to another person’s way of traveling. Last thing I knew, travel was supposed to be fun, like an ice cream sundae, with a learning experience on top, like a shiny red cherry, if you so choose to have one. Then again, maybe a trip is simply an escape from the rat race.

Social media is full of “influencers” who will have you believe that their way of traveling is not only better than yours, but that it’s easy and they’ll show you how to be like them, for a price. You can trot the globe while taking odd jobs like bartending and teaching English as a Second Language. Thanks, I got over working in bars when I was twenty-five, and I teach people’s kids every day and love sending them home at 2:15pm, no questions asked. I like my good paying job with paid vacations. I’d pay to see pictures of those “influencers” doing one of their real jobs in between the glossy shots from the pristine mountain top in New Zealand and the beach in Mexico. I want to see the “influencer” mixing a White Russian and looking picture perfect. Really.

Thank goodness for the unfollow button! I recently had to use it on one of the better known globe trotters that I had been following for a couple of years, because she was being pretty insulting to someone else’s way of life. What the heck happened to live and let live?

The other thought that I don’t agree with is that in order to travel in a worthwhile way you have to go to a foreign country. Make no mistake, I love exploring places outside the United States. I’ve done more than my fair share. But in a pinch, and let’s face it, we’ve been in quite a pinch since March of 2020, I’d take a road trip to the American West above all other traveling. I’ve ticked off forty plus countries thus far and have every intention of ticking off more in my own fashion once I deem it safe for me, but give me that road trip every time. It should come as no surprise that I’m heading to the American West this next trip too! I can’t WAIT!!

Here’s a secret about me that makes me different than the garden variety social media travel giant: I love coming home and I love being home, too. The pandemic gave me an excuse to stick close to home and explore my own backyard more. I always said that “someday” I’d do that more and, well, I didn’t expect cancer and COVID19 to give me the opportunity, but I’ve had a heck of a good time! I’ve always scoured New England in between bigger trips, but not like I have in the past two years. In my favorite movie of all time, Dorothy Gale went to great lengths to find out that her heart was in her own backyard. My heart is still and always will be in the American West, but New England is pretty cool too.

Before my cancer diagnosis I spent the better part of twenty years earning my keep as a special education teacher and traveling on school vacations. Maybe taking an extra day or two on either side to make my time away longer, or even escaping on a long weekend. Now that I haven’t done it for a couple of years I realize that it was exactly the way I wanted to travel. Make my money, pay for a trip, enjoy where I was without having to worry about work, and come home to earn money for more fun. After my diagnosis and through the COVID19 storm I continued my exploration as best as I could. Slowly, I’m getting my travel life back on track, though I’ve decided I want to do things and see places that I didn’t take the time to do and see before. Cruises and islands are of high interest, while twenty hour flights to the other side of the world are not really a priority. Oh, and more road trips, of course! Always more road trips!

In short, the Bucket List is officially made. It was time.

And so, I continue to explore as I see fit, and I am unapologetic.

Travel and let travel.

Dear Mr. Truck Driver…

See? I got your attention. Now you think that I’m about to give my opinion on the trucker convoys in Canada and the U.S. However, that isn’t the focus of my blog. Instead, I’m going to write about a recent experience I had with a trucker on the the Massachusetts Turnpike, otherwise known as I-90, locally known as “the Pike.” From my house due East, the Pike is a dull stretch of seventy miles of highway to Boston, and where bad behavior is at a maximum.

Before I zero in specifically on my good trucker buddy, let me first reiterate a frequent complaint of mine: Some people just lose their cotton picking minds when they get behind the wheel of a moving vehicle. Where does common sense go? I just don’t get it. It certainly seems that all anger, frustration, and power tripping is released on fellow drivers. Stupidity is at an all-time high. Messing with the lives of others becomes some sick game, all in the name of getting one car length ahead of someone else, or in a preferred lane before someone else does.

Okay, now let me tell the story of my favorite trucker in the world.

On Monday, March 14, 2022, I was heading to Boston for my monthly check-in at Dana Farber Cancer Institute. Yeah, you got it. I have cancer. I’m being treated for cancer. I’m not going to Beantown to party, or see the Red Sox, or to an art museum Truth is, I’d rather be working than going to Dana Farber Cancer Institute. I’m going because I have to. If I don’t go I’ll die. I’m tired on said day, and it’s early in the morning. I’m minding my own damn business, going 70 miles per hour in the center lane the way I always do. Other drivers fly by me, getting nowhere faster than me. I know that. They apparently don’t.

I pass a trucker going at a reasonable pace, and take note of it, because I like to see truckers who don’t think they own the road, who don’t think that just because they’re bigger they’re better. This 18-wheeler, from a company that will be named below, was inconspicuous, as all trucks and cars are until they do something off the wall. This one was a few minutes away from doing just that.

Back in the center lane after passing a few vehicles that were going a little slower than me, I settled in. Ten minutes go by, and suddenly Mr. Inconspicuous Trucker is right behind me flashing his lights at me. As a general rule and as a longtime driver with a clean record and hundreds of thousands of miles on all over the United States of America, I don’t allow other drivers, whether they’re bigger than me or not, to decide how fast I go or what lane I drive in. So I don’t budge, which only serves to piss off Mr. Trucker. My line of reasoning is this: There are two more lanes to move into. Use them if you don’t like my driving.

He doesn’t see things my way.

His next move is to start tooting at me and swerving. Then, the worst thing of all: Tailgating. In a tractor trailer truck that can’t stop quickly should I need to put on my brakes for something. But I held my ground, and so did he. I took out my phone and made a video going over my shoulder, showing the lights of this shithead glaring in my rear window, as well as how close he really was to me. Close enough for someone to reach out my back window and touch him.

I get it, you’re saying, just move for him! It’s your own fault for not moving! Here’s where we’re different. It’s against my principles to cater to a moron like this, particularly when I’m not doing anything wrong. And here’s the funny thing: He finally passed me, and then we got tangled up in stop and go traffic. So I had plenty of opportunities to take pictures of the company name and license plates, and Mr. Trucker got nowhere from his dangerous behavior. Just for good measure, he indulged in the ultimate in blameless behavior, and hung his phone out the window to take pictures of me. Imagine!

I eventually lost him, went to Dana Farber, and got all good news. But this experience sat heavily on my mind and still does.

Did I call Goulet Trucking in South Hadley, Massachusetts? Yes, after I read some pretty nasty reviews that indicate that this is a company that really doesn’t care what their truckers are doing. Daryl, the fellow I spoke to, didn’t seem too interested in me, but I asked him to tell my trucker friend some of the items I’ve already expressed above: I was going to Dana Farber. I have cancer. I was going for treatment. If I don’t go I’ll die. This already sucks enough. Why did he have to make the experience even suckier?

You never know who you’re messing with, what they’re dealing with, and how you’re making them feel.

I did the only thing I could. But I know that it won’t do a lick of good. Mr. Trucker will go out and terrorize someone else. Then someone else after that.

This experience brings up a point that surfaces more and more often now: When we’re blatantly mistreated, who can we really turn to if a clear crime has not been committed?

And the bigger question: Can we all just act like decent human beings instead of total brainless careless asshats?

Work in Progress: A Thousand Winds

I’ve written and published seven books under the pseudonym Brenda K. Stone. They’re fun and a little frivolous and I am extremely proud of them. Lately, I’ve taken a renewed interest in what I refer to as my “rock and roll series” and plan to read it after a long break away from it. The idea to pick it up and start writing again is a complete possibility. But not much will get in the way of finishing my current work in progress, “A Thousand Winds.”

The best writing I’ve ever done? “A Thousand Winds” is it. Since my cancer diagnosis, I come from a different place, and it’s not always a bad thing. It’s a deeper, more thought-provoking place. Interesting fact: I came up with the outline of the book before my diagnosis, and guess what disease one of the main characters was dying from? You guessed it, cancer. I’ve since changed that to ALS, so it wouldn’t hit too close to home. But like most authors, a lot of me is in the story.

The first few pages of any book are so crucial, and I’ve been reworking the prologues of “A Thousand Winds.” For a limited time, you can still read the “old” prologues here. Please enjoy the “new” prologues below, and drop me a line to let me know what you think!

A Thousand Winds

Janice

The way she looked at me is burned into my memory. The message in her eyes spoke volumes: You’re old. Therefore, you’re worthless.

She has no idea.

She thinks her generation invented sex. Drugs. Rock and roll. Millennials, or Generation Z, or whoever the hell they are, with Facebook and Instagram and TikTok, invented the world as we know it. The generation of youngsters who are afraid to show their faces without a “filter”, because one of their “friends” might see their soul, invented history. The “been there, done that” Me Me Me Generation covering up who they really are with whiskers or a pig nose, think they have the world at their fingertips.

 Will she ever know what it’s like to truly be loved? By the same man, for forty-eight years? Could she find joy in a sandbox? Or playing house in the woods, where the rocks are her toaster, the trees her shower stall? Did she ever have to disappear into that same forest to escape a man that would hurt his own daughter to satisfy his sick fantasies? No, because Jim and I protected her from that.

 I wasn’t so lucky.

 Coachella is a town one stop removed from the nightmare of my childhood, yet her biggest adventure. But was she marching in Selma, Alabama in 1965? Was she in the crowd for the “I Have a Dream” speech in Washington, DC, 1963? Did she watch the Beatles land at JFK on February 7, 1964, after hitching a ride from California?

Am I old and worthless now?

There’s so much more to tell. The life I’ve led even overwhelms me, to the point I have to leave it in the past sometimes as I struggle to move forward.

Kimberly doesn’t know any of it. All she knows is that seven years ago she found out that I’m her grandmother, and who her parents really were. She hasn’t spoken a kind word to me since.

Perhaps she’ll never know where her grandmother has been.

Because she hates me. And I’m dying.

Kimberly

“You’re such an asshole.” I toss a soiled napkin at Zac. I can relate to the crumpled paper as it floats to the carpet.

“I’m just gonna sleep through the whole fuckin’ scene,” he moans.

“C’mon, you have to help me,” I remind him.

“Grandpa Jim and me don’t exactly see eye to eye, remember? And you know what happens when a guy doesn’t see eye to eye with ‘ole Jimbo.” Zac makes a horrid noise as he pretends to cut his own throat with his index finger.

I blink, because his words sting. I feel like he should know better, and if he doesn’t, that I should tell him that he should know better. But I don’t.

Instead, I keep the light mood going.

“Do you think Kylie Jenner gets a visit from her grandfather that used to be her father the day after Coachella?”

We have a much-needed howl when Zac quips, “Did you forget that Kylie Jenner’s father is a chick now?”

My mirth is interrupted by the definitive sound of a car door slamming somewhere on the street in front of my apartment complex. A quick glance out the sliding glass door has me snatching up the napkin and running for my bedroom to put on the nearest pieces of clothing I can reach.

“Put a fucking shirt on, you sexy slob!” I shout into the living room.

“Yeah, yeah, yeah.” Zac scratches his belly and yawns, but is soon behind me pretending to hump me doggie-style as I’m putting on my underwear.

“I see Grandpa Jim still hasn’t traded in the Oldsmobile for the Porsche he deserves,” Zac deadpans. He seems to think that Grandpa has a lot of money stashed away in his mattress. In fact, Zac is obsessed with the thought. Maybe that’s why he’s so hard to get rid of?

“Shut up.” I suck on his bottom lip and rumple his hair. He’s so beautiful that I put up with all his other nonsense.

Zac pats my butt and chases me for a few steps as Grandpa’s knock falls on the door. I’m trying to stifle a grin when I swing it open to face the man who used to be number one in my life.

“Kimberly…”

The look on Grandpa Jim’s face forces my smile to disintegrate.

California Reunion

Hey, if you don’t mind I’m going to take a break from talking about living with a chronic illness for a post or two. I have to tell you about my reunion with California!

This joyous reconnection with the Golden State was extra special because it came so frighteningly close to not happening. In fact, as I said in my last post, which I wrote while I was on the road, the trip got cancelled twice, the first time because of cancer, the second time because of COVID19. For weeks I was sure that once again something would stop me from going, that it wasn’t meant to be. It was so nice to be wrong! And the trip could not have been more perfect.

If you said that I’m kind of “prone” to hiking trips, you would not be mistaken. However, this wasn’t a hiking trip. Which is not to say that I didn’t do any trekking. Of course I did! But the entire plan was based around seeking out graffiti in Southern California and born from seeing the works of a professional photographer on Instagram who travels the U.S. taking pictures of really cool stuff. I did my research and strung several sights together, then figured that while I was there I may as well just take another week to see some old favorites, and there was my California reunion!

I lived in Los Angeles for five years from 1995 through 2000, and traveled extensively in and around the state. I guess I didn’t really realize until now how blessed I was and am to have been able to do that. It’s the only place I’ve ever lived other than Massachusetts, where I was born and currently reside, and I have to say that for me, a lover of the American West, there could not have been a better place to be. Mother Nature took one of everything amazing and tossed it into California. Sometimes, more that one of everything amazing. Though I’ve been a million other places around the world, I’ve never quite fallen in love with anywhere like I have the American West. I used to crucify myself for never having lived in a foreign country. How silly that all seems now.

Unlike most people, who think the desert is “too hot” and “boring”, I absolutely love it there. Deserts have ghost towns, tumbleweeds, and cactus. What’s not to love about that? I spent several days driving around the Salton Sea, an imposing but fascinating (and smelly) remnant of a failed experiment to lure vacationers and home buyers seeking the good life. If you’re like me and looking for graffiti, sand, and desolation, wow do you ever have to see the Sea! In addition to all that there’s Bombay Beach, an almost ghost that was revived as a quirky artist’s town, and Slab City, an “off the grid” settlement where people live for free. There’s lots of additional interesting art in Slab City as well as East Jesus, the eastern corner of the “squatters paradise.” I even did some research into one of the towns near the Salton Sea because I was inspired to use it for a locale in the book I’m writing. Such excitement from a place most people pass by without giving it a second thought! Is it any wonder why I choose to travel alone so often?

Didn’t I tell you that California has one of everything? Or, let’s make that more accurate: California has EVERYTHING!! Let me expand on that.

The post-graffiti part of my trip brought me to the Sierras, where the best ghost town in America nestles. No, Bodie isn’t in the desert, but it is at the end of a wild dirt road about twelve miles east of Bridgeport, California, and it is a state park, so there is a small fee (I paid $8) that goes to Bodie’s upkeep, which is impeccable. On the way I drove a few hundred miles of US 395, which I have to proclaim one of the country’s great highways. I stopped off in Lone Pine, which is still very much like the desert, and did a short and stunning hike to Mobius Arch in the Alabama Hills, where I also got a pretty special view of Mount Whitney, the highest point in the “lower 48” at 14, 505 feet. Did I mention that you can see Whitney through the arch, too? No, the thrills just never end.

Mono Lake and the Mono Basin are right outside Yosemite National Park. To me, Mono is so good it’s okay to skip Yosemite to see it. Don’t miss the short hike through the odd fantasy of the South Tufa Trail. You can bet that I didn’t!

Girl, take a breath…

The June Lake Loop is a sixteen mile drive around four lovely lakes at an elevation of 7,600 feet. Of course I had to get some hiking in here, and I encountered some bristlecone pines, that are said to be the oldest living things on Earth, even older than sequoias and redwoods. Even older than me! The loop was my last stop in the mountains before I headed back to the desert. I had to have one final jaunt in the hot sand before I came back to reality.

Death Valley Junction is the gateway to the park of the same name and a charming little desert hamlet with a hotel and opera house, much of which are beautifully hand painted by its former owner. Read her incredible backstory here. I’ve loved this town since I first saw it on a map as a dreamy-eyed teen, and it was so special to see it again before I moved on to Death Valley. Yes, I intended to hit the trails, but at 100 degrees at seven in the morning, I had to rethink my plans. Hiking had to be done in short bursts with plenty of time in the air conditioned SUV in between! Death Valley has been getting a lot of attention lately for record breaking temperatures, but the mercury varies greatly depending on what part of the park you’re in. I headed to Dante’s View to marvel at the salty Badwater Basin far below. It was twenty degrees cooler and with a hair-mussing wind. Lastly, no temperature was hot enough to make me miss wandering through the pastel hills of the Artist Palette. I felt like I’d fallen into a giant vat of ice cream!

Two weeks, a two thousand mile loop, and I just barely scratched the surface of the greatness of California. Oh well, looks like I’m just going to have to go back!

The Fun Doesn’t Need to End with a Chronic Illness

At Mono Lake, California, South Tufa Trail

Did you ever notice how you wait and wait and wait for a certain day, (wedding, vacation, birthday) then it’s suddenly here, and then the days just keep going and going, even though you want time to stop on that pivotal day? Yeah, I’ve experienced that phenomenon many times in my life and am, in fact, feeling it even as I type. I’m currently on the later end of a road trip that wasn’t really ever supposed to happen. But it did happen, and I don’t want it to end, even though I have many other plans this summer!

This was the trip that I had to cancel in 2019 because of cancer. This is the trip I had to cancel again in 2020 because of COVID19. I got a really cheap plane ticket to Vegas this past April, when things were just starting to open back up, and I kept my fingers crossed that maybe, just maybe, I would pull the trip off the third time. Well, I’m kind of believing that “the third time’s a charm,” because it has been absolutely amazing, everything I had hoped it would be and more. All the photos included here are from the past two weeks. Sick of seeing my face all over my posts? Too bad. I think it’s only proper that if I’m trying to make a point I should show that I’m not just saying something, I’m doing it too. You know, talking the talk and walking walk. My message is: Yes, I have a chronic illness. Yes, I’m enjoying life, and yes, you should be too, whether you have a chronic illness or not.

Here goes post number three in a series of six. In my first two posts I started to discuss the basic rules of living life with a chronic illness:

1) Get the best medical care possible

2) Seek no sympathy

3) Find new ways to do what you love

4) Find new things to love

5) Surround yourself with positivity

6) Don’t let your illness define you

In this post I’ll expand on number three, Find new ways to do what you love.  And what better time to talk about it, than when I’m doing just that?

I am the queen of road trips. Not was. Am. I’ve been road tripping since I was in my twenties, and I’m a lot older than that now! When I was diagnosed with cancer in 2019 it sure looked like the only place I was going on a road trip to was the grave. But because I got the best medical care possible, my health and life turned around quickly and here I am, still at it. I didn’t give up anything that I loved to do. I may have had to do things in a different way until I was strong enough to do them like I did before cancer, but if it meant eventually continuing my pre-disease life even while fighting the fight, I was okay with that. Here are some examples of how I altered the pastimes that make me the happiest.

Writing: I had a lot of fun penning fiction for several years. Around the same time I was diagnosed I had decided to concentrate on blogging and writing nonfiction. Though I didn’t expect to be producing a story about how I survived Stage IV lung cancer (this is still quite unbelievable to me!) that’s what I did because it seemed like the right thing to do, it was therapeutic, and hey, it was writing! I really did plan to publish it, but eventually it only seemed to make me relive that part of my life over and over again, so I shelved it. But I didn’t shelve my love of writing. I’m currently working on another manuscript. You can read the beginning of it here.

Hiking: For over a decade I’ve been keeping activity lists and calendars. I love looking back at them and seeing all the things, near and far, long and short, I’ve done over the years. They also help me understand how I’ve built my strength and endurance back up after two bouts of progressing cancer. (I’m currently in remission.) Speaking of endurance, hiking is more often than not seen as a test of just that. Not in my book. Some of the best hikes I’ve done are easy with big payoffs. (The South Tufa Trail at Mono Lake, as seen above, comes instantly to mind!) As I was building back up to tougher hikes I did a lot of easy stuff that was very pleasing. Now, I’m perfectly fine with doing hikes and walks that keep me in shape but don’t necessarily challenge me. I’ve always been a sucker for a beautiful view! Usually once a week I’ll do something that does challenge me. I can still pull off the leg busters on command!

Traveling: Because of COVID19 the verdict is still out on this one! I’m continuing to get my road trip wings back. I took my new SUV on the road last summer, have taken weekend trips, and have visited my niece in South Carolina several times, all of which went as hoped and planned. Later on this year I’ll take my first international trip since my diagnosis, provided my health holds up and COVID19 stays quiet in the U.S. Here’s hoping that everyone’s gets vaccinated so we can keep moving forward!

I hope that my examples have given you some inspiration. Please don’t give up on what you love! Doing so is the biggest mistake you could make. You need to do what you love more than ever now. Do whatever it takes to continue to enjoy life!

On the road…literally!!

Utah Reunion

My post theme was 80s rock lyrics!

Anyone who knows me well knows that Southern Utah is my favorite place on Earth. And I’ve been to a lot of places on Earth. But if you look back on the past two years of my posts, you’ll find out there was a time when it sure looked as though I would never see my beloved land again. Well, guess what? Life is a funny thing, plays strange games with you. Just last week I had a reunion with my true love, and my trip exceeded all expectations.

Partition Arch, Arches National Park, the Devil’s Garden

I’m currently more than a year and a half into my journey with metastatic lung cancer. This is not the hiking trail I ever wanted to take, but I have to say that in some ways I wouldn’t change it. Yeah, I know, you think I’m lying. That’s because you’re there and I’m here, and until you’re here, you wouldn’t know. In a lot of ways I like myself better as a survivor of a disease that most don’t make it through. But I’m not here to talk about that. Perhaps that will be my NEXT blog. Today, I’m going to talk about my return to travel.

Ta-Daaa!! Selfie at Glen Canyon

Listen, I’ve done my time with COVID19. I’m fully vaccinated, don’t cause trouble in Walmart by being a mask rebel, stayed out of pubic places when I was supposed to. With things starting to look up, I chose to follow through on a date that loomed on the calendar as one of hope. COVID19 was not my only roadblock. Cancer was, too. A lot has happened since more of the shitty Big C was discovered in December 2020. I’m back in fighting shape. BUT…

En Route to Chesler Park, Canyonlands

I saw my oncology team a few days before I left, and voiced concern about my ability to do what I wanted to do in the southeastern corner of my beloved state. Just didn’t think that my endurance was what it should be. I was assured that medically and physically, I should be able to pull off what I set out to do. But I was full of doubt and asking myself questions that threatened to crush me: Can you still do what you used to? What you love to do? Or are you just pretending? Trying to put a happy face on a devastating situation? Let me tell you something, friends: your mind can really “F” you up. In fact, I thought about canceling the trip the morning of, as I had a full blown panic attack that lasted right up until I got to the airport. Then, this crazy calm swept over me.

Top of the world, Arches National Park

Similar things happened to me after my initial diagnosis in late 2019. The country-hopping woman that I once was dissolved into the meltdown queen of the grocery store. I had to work on me a lot to get myself back in the swing of a life that I thought was over, had to learn to walk through the valley of Those Who Don’t Have Cancer as one of Those Who Do Have Cancer. Had to swallow the bitter pill of never being able to live life without this curse after my hope of being cured was dashed in December 2020, between my 54th birthday and Christmas. None of that mattered as I moved smoothly through the airport and blended in with the crowd. Even less when I emerged from the dreaded 737-Max 8 in Albuquerque, New Mexico, the American West miraculously reached. And yeah, I know there are quicker ways to get to Southern Utah than from Albuquerque. But I LIKE the drive from there.

Hite Overlook, Glen Canyon. Lunch view!

The crazy thing about my treatment is that if I didn’t tell someone I have cancer, they wouldn’t know. At one time I told a lot of people. I no longer bother, because it doesn’t really change anyone’s attitude toward me, for better or for worse. I guess at one time I’d hoped that if I told someone they might have some real respect for me, but I’ve learned that for the most part, no one cares what I’ve survived. I didn’t tell a soul in the entire huge American West that I have an illness that is going to kill me whether I like it or not. It didn’t matter anyway. Because I was headed to Utah. Nothing matters when I’m heading to Utah. Even less when I’m actually there.

Yeah.

After my emotional reunion at the state line, I motored on to Moab, first discovered with my beloved Mom in 1995, and the center of my traveling world, just like she was. Mom was taken away from me in 2004, but Moab was not. I settled into a cozy room and had to decide if I was going to move forward as me again, or if I was going to crash and burn and go home with my tail between my legs.

Beneath Morning Glory Bridge, Grandstaff Trail

I usually have more time to work with. When I go during the summer I can do some short hikes in between long hauls, pick and choose carefully, move stuff around, and get maximum mileage. Not this time. This was April school vacation week. Time was tight. Before I even arrived I changed my original plans, thinking the treks I relished weren’t in my reach. However, I stuck with an all-new hike on my first day out, the Grandstaff Trail to Morning Glory Bridge, a moderate offering with a lot of stream crossings and a massive natural bridge at the end. Unsure of myself, I swallowed my fears and started slow. Paced myself, something I never really had to do before. One foot in front of the other, pour water down my throat, have a snack if necessary. It worked. I felt okay. My energy level was normal enough. I wasn’t dragging along or huffing and puffing. I was also at much higher elevations than anywhere in the East, so that was a good challenge too. Grandstaff went great. So I put the original plan back on the table!

Back Home!

Back in 2013 when I first had the crazy idea to hike all the national parks in the United States I knocked off all five Utah parks in one trip. I’d been thinking about repeating the Devil’s Garden at Arches, and had it on my list, remembering the vast array of spectacular scenery along the way. This time I wanted to do the loop, instead of the out and back I did in ’13. The primitive loop. What the heck does that mean? Well, let me tell you, I found out! It meant exactly what the sign said:

No lies here!

I could have turned back. But I didn’t turn back. This was my proving ground, and the hike turned out to be nine of the most challenging miles I’ve ever done! Think scaling twenty foot rocks, neck-breaking drop offs, hiking in soft sand. Oh, and at least ten incredible arches along the way! I’m not sorry that I did it, even though I didn’t feel like getting up early enough to do the eleven miler that I planned to do the next day. No worries, I cut it down to six and got a crazy workout anyway! And still had a bit of energy in reserve for Glen Canyon on the last day of my reunion!

Good-bye, My Love. Until Next Time…

Then there I was, back at the sign. The scene is always so different in reverse, when Utah is in my rear view mirror. But as always, I swore that I’ll be back. Lord willing, I will be back!

Until then, I have more adventures, more reunions up my sleeve, and I’ll continue to live by one of my favorite sayings ever: